Saturday, October 4, 2014

Dr. KK Follow-up

We had our follow-up with Dr. KK on Monday, and all I can say is WOW. It was a lot of information to take in, and it seems like we have a lot to work on. I am still processing everything, and I wonder if my head will ever stop spinning! I will say that after being mostly unexplained for so long, I am happy to have something concrete to focus on. Hopefully it'll make the difference we've been looking for. 

In a nutshell, I'm going on quite a few additional supplements and medications before we get going with our next cycle. We are hoping to do a mid-November ER/ET and will freeze-all if my uterus doesn't get sorted out by then.

The details if anyone is interested 
  • High IgG
  • Moderately high NK cells = IVIg
  • Vitamin D deficiency = supplement
  • Protein S deficiency = Lovenox
  • High PAI-1 = Metformin, low-carb diet, regular exercise (though marathon training does not qualify)
  • Autoimmune Thyroiditis = Synthroid
  • Low-normal DHEA = supplement
  • POF 
  • Positive ANA = see a rheumatologist, treat with Prednisone & IVIg
  • Restricted blood flow to the uterus 
  • Recommended Supplements: CoQ10 (600mg), Vit D (4000iu), Vit E (400iu), Fish Oil (2000mg), DHEA (25mg)
  • Recommended Medications: IVIg, Prednisone (10mg), Lovenox (40iu daily), LD Baby Aspirin (81mg), Metformin (500mg), Synthroid (25mcg)
  • Recommended Lifestyle Changes: low-carb diet, regular exercise, maintain current BMI, no marathons
This past week was a bit chaotic (ok, it was REALLY chaotic) as I scrambled to get supplements, prescriptions, and attempt a low-carb diet. Let me tell you, I suck at the low-carb thing and I hate it. I made an appointment with a nutritionist for Tuesday. Hopefully he can help me make sense of all this (especially since I need to maintain my BMI). 

I also made an appointment with a rheumatologist for October 14th. Dr. KK recommended that I get a full evaluation because my ANA panel was a strong positive (with a speckled pattern, which is suggestive of Sjogren's Syndrome). Hopefully all is well in that department, and I get away with a clean bill of health...

Coordinating the demands of three doctors, two nurses, and a nutritionist is already stressing me out big time. I am praying that I don't lose my mind through all of this. 

And finally, yes, the no running thing... Sigh. What can I say? Of course I am disappointed. When Dr. KK said that I should get regular exercise, I had a little glimmer of hope that the marathon training would be ok. Nope! She is concerned that running to that extent could cause an autoimmune inflammatory response that would be detrimental to our cycle. We have invested a lot of time, energy, and money into this cycle already. I do not want to jeopardize it for a race, so I am ok with letting go (though it was a bummer to have to turn down a last minute spot in this year's NYC Marathon). I asked Dr. KK how soon I should stop marathon training, and she said immediately. .......... :'( I was able to advocate for myself, and told her my concerns about triggering another depression. She agreed that I could continue running up until the start of my cycle (no more than 10 miles on the weekends and 3-4 runs under 60 minutes during the week). Once my cycle starts, then no running.

Thanks for stopping by to read my update :) Have a wonderful weekend!


  1. I'm glad that you're getting some answers and I hope beyond hope that this will be what you need for a successful cycle. I'm sorry about the loss of marathon training, I know that must be really difficult. Hopefully you'll find some other ways to help keep your mood up. Always rooting for you!

  2. Wow, it sounds like you got a lot of info. I'm sorry that you're aren't able to continue your marathon running. Instead you'll be running toward your baby in this next cycle. Hope you had a nice weekend!

  3. It is nice to have more information to work with, but that is definitely overwhelming. I'm really sorry about having to take a break from running, I know how much running means to you, and how excited you were for that marathon, but you will do it again, it's just unfortunately on hold for the moment while you pour your energy into this cycle. Sending lots of love and hugs <3

  4. OVERWHELMING! I know. And I know it's all for a good -- no way, GREAT, cause. Especially at the time you received it -- a Monday -- when all the food shopping had been done for the week. When you have your entire week, now wait, next TWO months planned out to the T. You know I told you, if ever you feel depressed or down or out or whatever, I am here! I am here to lift you back up. Just say word. What can we do during our Annual Christmas Break if you can't run? We can take some yoga classes together??? We'll figure something out!!! You can come to the track with me with the whistle and loud speaker. We could bake broccoli cookies. HAHAAHaH

    Okay, I really should be working. Just thinking of you! Love you.